About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Thursday 24 September 2009

Hi everybody
well this is my new blog and i thought i would let you know how i am getting on. i have just started school this year and i go on two days a week i am really enjoying it and love all my new friends and teachers. I go to woodlands school in chelmsford and have swimming lessons there which i love they also have a really good play ground and i go on the swings which i am very excited about as i like the swings but the big parks where we walk my dog buster dont have swings i can go in because i cant sit up.
Mummy has phoned a man to ask if i can have a harness so i can use some of the disabled swings that there are about now. I will like it if he says i can.
All my family have been very busy trying to plan a dinner dance to raise money for me that will be on saturday 21st novemeber in rayleigh and tickets are fourty five pounds each which includes a dinner a dj and a live band there will also be a auction and raffle on the night. Mummy is excited as john travolta wrote to daddy wishing us luck for the night and sent us some signed photographs to auction off . Madness also heard about what we where doing on their latest tour and have given us a signed t shirt which is all framed.

Tuesday 1 September 2009

Isabella's First Blog Post....

Hi everyone this is a test to see if this thing is actually working, hopefully it is working ok.


We are working on making this page really cool so bear with us and we will have something much better up and running in no time.


Remember to add this site to your favourites now http://isabellasfund.blogspot.com/


See ya soon guys