Hi everybody
AS you will all be aware i have been working hard with my physio and have improved so much. Mummy has said i am like a different little girl. I think i just like to prove doctors wrong to think eighteen months ago the doctors tried to get my family to sign a do not resusitate on me as they thought i had no quality of life. well i have definately showed them what a happy little girl i am. i have had a very busy week with my cousins who came to visit and have been swimming and ice skating. Mummy got a bit tearful at ice skating as she thought that was something she would never get to do but with the help of a specially adapted board that fixed to my wheelchair i did, it was the best fun ever.
Obviously my family are keen for me to continue to progress but its expensive paying for therapy even in this country it is nearlly one thousand pounds a month which my family dont have. It would obviously greatly increase if they took me back to America. Any way a very kind man (and extremely talented photographer) called adam is doing a charity abseil for me. all support would be appreciated as he is extremely scared of heights ( sorry adam i am probably not making you sound very macho) but people need to know how much you care and what you are doing for us. Any one wishing to donate can do it either on paypal on my blog or through adams site which has the bank details on. His web address is adamalexphotography.com and scroll down and click on the link one of them has the bank details on.
All support would be appreciated
Lots of love isabella and family
About Me
- Isabella Grace
- My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info
Friday 2 September 2011
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