So this is a quick post to let you know that we will be in ITV surprise surprise tonight at 7pm. Obviously I can't go into details at this point so please all tune in And see what Holly had in store for us.
We have also launched a brand new web site today for Isabella which has mums diary section in so I will probably start updating that more than the blog. You will be able to see how life is changing for us and Isabella and how the fundraising is going. Please all check it out its www.isabellasfund.co.uk
About Me
- Isabella Grace
- My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info
Sunday 25 November 2012
Saturday 3 November 2012
Sorry it's been so long I have been struggling
Sorry it's been so long since I have wrote anything. We have had a lot on and have been away for our good friends wedding. Isabella was a little bridesmaid and looked lovely. Although she preferred the disco and really came into her own when the music started think the rest she found a bit boring lol.
I think the other reason I haven't been in is that I always try and be positive and I have been struggling keeping positive. The fundraising is going great but it just hit me that I can't provide for my daughter and its a really hard thing to accept that you need help. But the truth is we really do, many of you know that we are trying to raise £30,000 for Isabella's therapy what you might not know is that we are also trying to get our home adapted for Isabella we will hopefully receive a grant towards the cost of some of this but we still need to raise probably an additional £20,000 to get the adaptions done. At the minute we are carrying Isabella upstairs to her room and trying to bathe her in a normal bathroom as we can not install any hoists as it will all be changing and the rooms aren't currently big enough to fit them the older she gets the more difficult this is getting and the more strain its putting on my back. I have just found out from the council who do the grants that we have to get the application in very quickly otherwise they will withdraw us from the application process, the problem being from the point they approve the grant we have to have all work finalised within twelve months and there is the problem we don't have £20,000 and we can't get a loan or mortgage our property any more so the fundraising pressure has just gone crazy. As well as this we have had to reduce the amount of physiotherapy for Isabella as we were paying £1000 a month and the money was disappearing quickly do we have had to reduce to once a week.
Hope this explains a little about why I haven't been in I have needed some time to get my head round everything I need to do and provide for my baby whilst at the same time working.
Any way my motivation has kicked in and we will get everything Isabella needs because she is an incredible little girl who touches so many people and enforces what's important in life..... Family.
Love you all and thanks so much for your support it keeps us all going
I think the other reason I haven't been in is that I always try and be positive and I have been struggling keeping positive. The fundraising is going great but it just hit me that I can't provide for my daughter and its a really hard thing to accept that you need help. But the truth is we really do, many of you know that we are trying to raise £30,000 for Isabella's therapy what you might not know is that we are also trying to get our home adapted for Isabella we will hopefully receive a grant towards the cost of some of this but we still need to raise probably an additional £20,000 to get the adaptions done. At the minute we are carrying Isabella upstairs to her room and trying to bathe her in a normal bathroom as we can not install any hoists as it will all be changing and the rooms aren't currently big enough to fit them the older she gets the more difficult this is getting and the more strain its putting on my back. I have just found out from the council who do the grants that we have to get the application in very quickly otherwise they will withdraw us from the application process, the problem being from the point they approve the grant we have to have all work finalised within twelve months and there is the problem we don't have £20,000 and we can't get a loan or mortgage our property any more so the fundraising pressure has just gone crazy. As well as this we have had to reduce the amount of physiotherapy for Isabella as we were paying £1000 a month and the money was disappearing quickly do we have had to reduce to once a week.
Hope this explains a little about why I haven't been in I have needed some time to get my head round everything I need to do and provide for my baby whilst at the same time working.
Any way my motivation has kicked in and we will get everything Isabella needs because she is an incredible little girl who touches so many people and enforces what's important in life..... Family.
Love you all and thanks so much for your support it keeps us all going
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