About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Tuesday 17 January 2012

Hi
 well i dont know were to start soooooo much has been happening, adam did his sky dive he was so brave we are all so proud and grateful to him. He is one of them people that restores your faith that there are good people out there. to be honest with you we have met so many kind people whilst raising money for isabella  its touching. Its a shame the good people do doesnt make the papers quite as often,

The fundraising is starting again, this time it goes to my sisiter karen and my sister in law suzie although to be honest she is more like a sister she has been part of the family since she was at school. They are completing a sponsored walk in june for isabella. Some how calling it a sponsored walk doesnt seem to do it justice they are actually walking from Barrow in Furness in Cumbria ( for those rubbish at geography its the last county before scotland on the west coast) to chelmsford in essex. this is going to take them approximately two weeks of walking as they try and venture not only south but also across country. We all think they are slightly mad but we rae all so greatful and hopefully this will raise a lot of money as they will be in soo much pain bless them with them averaging twenty miles every day.
If any one wants to sponsor them it can be done on the pay pal link on this blog address, if you could reference the walk that would be great.
We also have a facebook page set up called " walk for isabella" please find it, like it and share it so we can make our cause as well known as possible, which will hopefully help as much money as we can.

NOW on to the BIG BIG news, those of you that have helped us raise money in the post will understand how little isabella could do so i am so happy to announce that she is now sitting on her own for approximately one and a half hours on her own and plays with her toys. Hopefully you will appreciate what a huge step this is for her and the quality of her life is now a thousand times better. to think this little girl was unable to play with toys before America let alone sit on her own and do it.  So big thanks to Therapies for kids in America and celebral Palsey physio centre in Milten Keynes who are dealing with isabellas mmonthly therapy. I honestly feel the sky is the limit.


All our love

Christine isabella and family