About Me

My photo
My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Saturday 31 March 2012

family fun day

i have just booked baddow recreational ground for the 3oth june, this will be the final leg of karen and suzys walk. The plan is that they will end their walk at the centre and that we will have a big fun day to celebrate. We are currently trying to source bouncy castles etc for the kids and there will be arts and crafts stations for them to play . The hope is that we will also do a sponsored toddle waddle. ( a small sponsored walk / push /bike for toddlers around the field )
Sponsor forms and details will be available next week.

hope to see you all there

christine, tony and isabella

Friday 30 March 2012

77 days to go

Well its 77 days until Aunty Karen and Aunty Suzy set off on their sponsored walk from Barrow in furness cumbria to Chelmsford in essex. This is not going to be easy and training has been far from smooth with painful shinsplints before they have even started, i think we can appreciate how difficult this will be. When we started this blog it was way for our family to stay in touch whilst we were in America with Isabella. Well how times have changed, i never thought i would see the day my little girl smiled and giggled let alone sat on her own and played with toys. This is a little girl that couldnt play or interact with anybody.
From the bottom of my heart thankyou to everyone you have given us the most precious gift.
This has given us hope and it has taught me hope and that you should never accept limitations, i am often asked what isabellas prognosis is the truth is i dont know but its looking a whole lot better and whilst i dont know if she will ever walk she is now putting her feet to the floor which is a start.

I would love to take isabella back to america, whether we ever will i dont know it was an awful lot of money, the centre in milten keynes is great but and whilst not as much as america still costs more than we have available to us, which is why we are so grateful for all your help.

On the 30th June we will be holding a family fun day at Baddow recreational ground which will be the finale of the sponsored walk we will have a childrens sponsored toddle waddle round the field as well as activities on for the children.
It would be lovely to meet you all  and i am sure karen and suzy would love the support

all our love
christine , tony and isabella