My life since america

Hi everybody well things have been so busy since i returned from america, the flight from america was just awful and i cried the whole time. When we went to book in Virgin Holidays had messed up our booking and had put us on a flight out of the wrong city so we were not allowed on our flight that was on our booking form as they had filled all the spare seats because of the volcanic ash. Mummy became upset because she was worried about me not having a lot of milk left for me as we had to throw a lot of it away once we found out the flight was not delayed as your not allowed a lot on the aeroplane and we never for one minute thought thatthey would have forgotten to book us on a flight. They thhen told us that we could fly the next day which was fine but it took a long time to sort out as they had to arrange my specialist seating for the plane. WE then had to go to our hotel for the night although Virgin refused to give mummy and daddy any money for foof and told them they had to claim it back when we got home they said they would try and find extra milk for me but they never got back to mummy about it and the next day there was no virgin reps anywhere in the airport. Then things got worse the flight number and time that they gave us didnt exist but eventually the check in people found what flight we were on mummy yet again clarified my seat would be on the plane as although i got stronger in america i still cant sit up on my own and when i try and sit up its like a gym work out to me and you cant do that for ten hours. We eventually get on the flight and it was definately not a Virgin flight the plane was so old that i had concerns that it was capable of long haul but that wasnt the end of our problems just merely the start.We went to our seats and couldnt find the specialist seating for me so mummy and tony asked the air hostess were the seat was and after waiting for twenty mins we were told that they didnt have one and that we would need to hold her up right for the whole flight. When we complained that this wasnt safe or possible we were told that we had to make a choice that we even went on that flight or got off the plane and waited till their was space on another flight and that we would have to wait for a seat to be sent over from england and because of the volcanic ash they couldnt tell us when that would be. Mummy explained that i had  a lot of medication that would be running out and that they had no more milk for me as they had to courier it over from the uk before we went to america so if we got off the plane it would mean not only starving me but the chances are that i would end up in hospital fitting due to not having more epilepsy medication. In the end mummy made them bring my car seat up from the hold so that i could be secure but the seats were so small that there was  no where for my legs and i cried the whole way as i was in so much pain from my positioning. We asked if they could put the ar seat somewhere so i could lie across mummy and tony lap but they refused to take it away which also meant tony was trapped in his seat and couldnt get up the whole flight.
When we landed all the landing crew came over to the plane to take pictures because the plane was so old that they didnt think they existed any longer. That just kind of summed up our flight home and the fantastic service we recieved from VIRGIN.

Anyway back to good news things have been so busy since we returned home as mummy has been trying to find places for me to have physio and to change her working so that she has more time to focus on getting me strong, the plan now is that from september i am going to school monday to thursday i am very excited about this but will miss everyone at kiddi karu nursery as they are the best and love all my friends there. Then on afriday me and mummy will drive up to bedfordshire and go to the Celebtral Palsy Physiotherapy Centre  for two or three hours of physio depending on how well i do and then once a month we will go up there for a week of intensive therapy. As well as this we have found a wonderful charity in chelmsford called Charms who provide Hyperbarick oxygen therapy so every saturday i go there and have treatment for an hour and a half i didnt like it at first as i have to wear a hood but i am getting better and getting used to it now last time i just cuddled up with mummy and went to sleep.