week three of treatment

Hi, appreciate these posts are not as frequent as at the beginning but we are all just getting very tired by the early starts and  long days and tend to be falling asleep when we get in as you will all notice on our return as despite the heat we are all still very white from being indoors all day.

Well this week has been a hard week i have really not been happy, i have done my best to try and stop them making me do my exercises as all my muscles have been hurting. I have been screaming and shouting constantly. The one good thing is because of all my noise i know have my own private room  for treatment which i prefer as i get all the attention and ashley and luana cant talk to any one else. I am slightly confused by it all as previously when i get really upset people stoip what they are trying to make me do and give me cuddles but Ashley is really tough and just carried on, she tried to talk to me and calm me so i knew she was starting to give in so i cried louder and then i couldnt believe it they all just ignored me and carried on doing my exercises. I gae up then and just did it, think she must have some magic power where she isnt effected by my cute face. Its ok though as i still got lots of kisses and cuddles in between exercises.
My worst exercise has always been when they make me lie on my stomach and put my arms on the floor they keep saying i need to put weight through my arms to strengthen them but i dont see why . Ashley keeps saying that i need to learn to put my arms out when i fell to the side but there is always some one there to catch me or i am on soft things and end up on my face which i think is funny. Nobody else does. This week however they managed to some how find an even worse exercise, they put me in my suit and i thought i was going n the cage which i like but i have learnt that the cords take my weight and fling myself backwards in it. However this time they took me to a wall and tried to get me to stand up tall against the wall, they where holding me against it and there was no cords or anything to take my weight well i screamed and screamed as it really hurt. Am hoping they dont keep doing it but knowing them to they will. They eventually put me in the cage but instead of me praticing sitting which i love they made me do more standing and then had me doing what they called squats. They are awful dont ever do them they really hurt. Mummy had to give me a hot bath after that and a massage as i was very tight.


Not only do i keep getting subjected to this every day but then once its finished i have to go and see rose, i like rose but i dont like what she makes me do. Mummy says she is my seach and language therapist and is going to help me eat one day hopefully. I am not even bothered about eating so just wish they would leave me alone. Rose keeps putting sticks in my mouth and vibrating things and then presses on my tongue on face i hate it and i tell her i hate it. I even try and push her away and grab the stuff and throw it on the floor but its like she has a magic drawer and more just keeps appearing. Mummy and tony are rubbish as i was doing well at fighting as it was hard for rose to hold both arms whilst trying to control my head so they decided to come help out and hold my arms i couldnt believe absolutely no loyalty. Think i made mummy feel bad as sometimes she had to leave the room and tony just had to hold my arms. Rose keeps trying to make me swallow but i dont like it she just doesnt seem to listen and keeps going on about it, every day i get this its just awful.

Well by friday i had been through this all week and was sure that they where all going to give up i mean how much screaming and crying can these people take. o i started off screaming as normal, and they carried on right through it i couldnt believe it. I then went to mummy for my ten minute break and had a cuddle, i could tell mummy was finding it hard as she was cuddling my very tight and seemed a bit stresses. Ashley then came and got me and it was tiome to go again, in my suit i got, we decided to see whether i would stand in the suit like in the pictures we put on in week one with my therapist behind me. Last time i cried when they first stood me up as hated my feet being on the floor although i calmed down for a bit, they then pushed my feet with theres to make my legs move as i couldnt move them on my own. Luana said she wanted me to try again so we did, i decided not to cry and to try my best, luana and ashley where talking to me and we went up the corridor towards the parents room which is about five foot away if not further when i got to the parents room i saw mummy and tony look out as they could hear us, they both jumped up and everyone started cheering it was so good so i though i would carry on. I then decided thast i didnt need luana to keep kicking my legs to move them so started doing it on my own everyone was really happy but they laughed because every now and then i woulod do a really big step. I have decided that it was fun having every one watching me and being so happy with me so i caried on walking round. I had one little break in the middle but ashley said that she worked it out and that i had gone nearlly three hundred feet. I have lots of work to do as need to get so much stronger to be able to support my weight but everyone wasx smmiling all day.

I decided that this was a nice feeling so when i went in to see rose i decided not to fight as much she still tried to do the stick and i didnt like that, rose promised me that she would stop using the stick when i learnt to swallow on my own so i did a swallow and they all cheered, i really like this cheering. Rose mummy and tony all then just kept staring at me which was a bit weird but i like being center of attention so it was good. I then swallowed again and again and have decided its not that bad after all so keep doing it now and am still getting cheers which is really good.

After this we had to see Pattie who is our doctor that is working on a home plan for mummy to take home to try and get me to eat one day, it seems like she is never going to give up. pattie already knew about me swallowing as really please with me as well. She was showing mummy and tony the exercises that they needed to do with me when we got home, this was my favourite bit as she was demonstarting them on tony so he had to have the stick in his mouth as well. Pattie has put me on something called a pro biotic as my blood results came back and all m,y levels are all overthe place. Pattie started talking to them about poo it was quite embarrasing but then mummy and tony couldnt stop laughing because pattie started to draw them diagrams of poo and how they might look different it was very funny. Even Pattie started laughing.


I am now looking forward to a relaxing weekend although we are going to a baseball match this evening as they have fireworks at the end mummy thinks i will like this as well as the noisy crown. I will let you all know what its like tomorrow. I have some video of me walking but we need to get the correct software to put it on our computer so it might have to wait till we get home