About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Saturday 31 March 2012

family fun day

i have just booked baddow recreational ground for the 3oth june, this will be the final leg of karen and suzys walk. The plan is that they will end their walk at the centre and that we will have a big fun day to celebrate. We are currently trying to source bouncy castles etc for the kids and there will be arts and crafts stations for them to play . The hope is that we will also do a sponsored toddle waddle. ( a small sponsored walk / push /bike for toddlers around the field )
Sponsor forms and details will be available next week.

hope to see you all there

christine, tony and isabella

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