About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Sunday 25 November 2012

Exciting times- surprise surprise and new web site

So this is a quick post to let you know that we will be in ITV surprise surprise tonight at 7pm. Obviously I can't go into details at this point so please all tune in And see what Holly had in store for us.
We have also launched a brand new web site today for Isabella which has mums diary section in so I will probably start updating that more than the blog. You will be able to see how life is changing for us and Isabella and how the fundraising is going. Please all check it out its www.isabellasfund.co.uk

5 comments:

  1. It was very good to hear your story on Surprise Surprise. I do hope others are inspired to donate to your fund. Good luck!

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  2. whats the just giving or paypal address? also have u got a facebook page as id love to promote what u are doing xx

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  3. What a beautiful little girl you are :-) You and your family are inspirational and you should all be proud of yourself. I hope your trip to Fort Lauderdale brings you progress and I hope you say mummy soon. Jo Leggett xxx

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  4. touched by your story, i hope the treatment brings you on leaps & bounds, for such a special little girl x

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  5. You brave girl! it must take guts to go on telly like that. Come back and visit my website
    www.chloespartyorganiser.weebly.com

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