So its been some time since i have updated the blog unfortunately i have had a few health problems so not had as much time as possible to get on the computer and update how things are going. As such not much has been happening.
So this weekend we are taking isabella to Brownstock which is a local festival, i am so excited am sure isabella will love it with all the music and the atmosphere. Brownstock is run by a local family in essex who host the festival on their farm. They have been extremely good to us and have agreed to put isabellas collection pots out for us. Not only this but they have offered children from little havens hospice tickets to attend the festival. For all of you essex people that dont know about it google it its great with some great acts confirmed such as labrinth and nero am sure tickets are still available at a fraction of the cost of v festival.
Will post some pics of isabella at her first festival next week.
So in relation to fundraising we still have a huge way to go, the funds are slowly creeping up and we are not far fom £8000 although we still have £22000 to go lol
The next event will be on 20th September when O Connors bar in chelmsford will be hospting a quiz night, they have been a huge support to the fundraising, this will be the second quiz they have done since fundraising has started and i am sure it will be a huge success. Its £25 per team, with teams of up to six people. The quiz starts at 8 so get there early to make sure you get a table.
So isabellas step father tony and our good friend Nick are in the middle of planning a sponsored kayak. The plan is that they will do the length of the thames over five days covering a total of 190 miles. This is a huge challenge considering neither of them have been in a kayak. The plan is that they will do this in April so we are currently looking into getting them all there licenses that they will need as well as some lessons lol.
Obviously the main reason they are doing this is to raise money for isabella so i have been sending letters out to local companies to see if any of them will sponsor the boys in exchange we will put their company logos onto the kayaks. I am also looking into trying to find some one to do a proper web site for us at the minute which will give us the ability to put company logos on the site for businesses that sponsor the event. I have also sent out letters to all the supermarkets in our area asking for the opportunity to go into the store to bag pack this was ahuge success when it was done in the lake district so hopefully some of them wil let us. We have had a letter from Morrisons in maldon who sadly cant help us so fingers crossed for some of the others.
A huge thanks to all the people that have and continue to support us its hugely appreciated
About Me
- Isabella Grace
- My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info
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