About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Monday 12 October 2009

Being Famous

HI well i have been very busy lately with starting school and nursery its a hectic life, mummy has had to get a diary to remember all my things. Last week i was in the southend echo advertising my black tie event i cant wait i am allowed to buy a new dress for it and mummy is supposed to be eating healthily although she has just eaten two chocolate biscuits, she is convinced that if no body else sees it then it doesnt count. I have another photo shoot with a lovely man from the yellow advertiser who is going to get a picture of me with daddy, this should be good as its a free newspaper so will go to everyone.

The plans are going great and people have been very kind offering there help with decorations and things for the night. We have had a lovely letter from John Travolta who sent us two signed pictures that we can auction off which was such a surprise we never thought he would answer my letter especially when ant and dec who are no where near as famous said they wouldnt do anything to help and didnt even send us a signed picture to raffle off.
Yesterday my daddy got a letter from barbara windsor from eastenders who was just lovely she sent us one of the cardigans that her character wears which we are going to auction off on the night it has a letter of authenticity with it, she did apologise about the fact she was unable to come but we are just really happy that she took the time out to respond to our letter

hope everyone is well and thankyou for looking at my blog

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