About Me

My photo
My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Wednesday 21 October 2009

Hello,
  i have been doing well this week as i have put on weight and am now nearlly twelve kilos which is great for me as i was ten kilos for nearlly a year. Yesterday i went to see one of my consultants and he thinks that because my heart has been doing so well that i can reduce my heart medicine and may be able to stop it which would be brilliant as at the minute i take fifteen doses of medicine a day and if i didnt need them anymore i would be able to reduce this to nine doses.

Good news though a brilliant band called alcojones have confirmed for my dinner dance they have a web site which is http://www.alcojones.co.uk/. You can listen to their music on this website.
All my family are now desperately trying to sell as many tickets as possible so if you want tickets please contact christine on 07515715121 or uncle jason on 07712857441  i also have an email address which is isabellacox@hotmail.co.uk

The dress code for the dinner dance has relaxed as it was originally advertised as black tie but this has been relaxed but smart wear would be appreciated.

1 comment:

  1. Hi there,

    You don't know me, but I am a friend of Kirsty Boggi (nee Ashworth), and she asked me if I could help raise some money for you. I am an solo Shiatsu Practitioner, so don't have a lot of money to donate, but have made a small donation and posted Isabella's page on my business Facebook page for you, as Kirsty said she thought you would be happy with that.

    I really hope that's ok and I hope it helps. I have over 100 followers, so hope at least one person responds! If you would like me to remove the link, let me know and I'll take it off straight away - but I assure you I've acted with the very best of intentions :-)

    Keep visualising your goal and The Universe will conspire to make it happen. All the best, Helen R

    ReplyDelete