Hi everybody, i have been busy lately with starting school, its really tiring and i keep falling asllep as soon as i get home however i luck extremely cute in my school uniform i will post some pictures soon so you can judge for yourself.
Tickets are now on sale for my black tie event in rayleigh essex am very excited but every one else s very busy wityh getting all ready.
Thankfully dont have many appointments at the minute but i have to go to great ormond street in november to have more tests done on my eyes as they want to see if the reason i am blind is because of my brain or if there is a problem between my eyes and my brain.
The doctor told mummy that he had concerns about my hearing as well but we may never find out because the doctor said a lot of the tests are done by using vision and as i am blind they cant do it but he is going to get some advice as to whether there is anything else that can be done.
Everytime my family think they know about all my problems something else seems to come up, but my family are used to it now and dont really worry about all these titles because regardless i am just isabella and i am a very special and happy little girl and what ever the doctors say that wont change
About Me
- Isabella Grace
- My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info
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