Hi every body ,
just want to say a huge thankyou to every one who has help make this possible, my mum is busy trying to get packed at the min but i keep being sick or just dirtying lots of clothes so she is finding it hard to get on top of it all. We are nearlly all packed but think mum is getting worried about how i will cope with the flight as i am not used to be sitting up for so long but i am sure i will be fine and if not i will just lie across mummies knee so i can have a stretch.
We will post on here regularly and let you all know how i am getting on and we will put lots of pictures of me having my treatment in my gallery on my blog so you can all see.
this is only a quick post as we have still got so much packing and organising to do
About Me
- Isabella Grace
- My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info
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