About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Thursday 31 May 2012

Isabella has finally sat up on her own

Well i am extremely excited to announce that isabella has shocked us all and yesterday evening she decided she could get from lying down to sitting up all on her own. As you can imaging this is a huge shock for us all but one we are so excited about. It just goes to show that we were doing the correct thing continuing to push her and now more than ever has shown us that its not out of the question that she will walk one day.
She was so pleased with herself and has continued to practice. She was awake last night until half one in the morning practising and everytime i tried to get her to lie down she would giggle and pull herself back up. To be honest as tired as we were we had waited six years for that moment so we ended up sitting up with her and laughing at how naughty she had become.
Before isabella was born i had alot of expectations about what i would and wouldnt do and i guess we all talk about how our children will never misbehave. But we take  for granted the ability it takes for a child to be naughty and cheeky and how it shows their personalities are developing and how they are able to make decisions for themselves and have an understanding of the world around them. I am by no means saying we should allow our children to misbehave but just take a second to appreciate every achievement they make no matter how big or small. Life goes very quickly and we are all under so much pressure that i think sometimes we all need to take a step back and look around us at all the amazing things that are happening every single day, isabella has taught us so much and she has an amazing way of bringing out the best in people. through isabella we have met the most amazing and interesting people and it has shown me that there are a lot of extremely kind people around and there is although sometimes it can apprear hidden a great sense of community that we should all be proud of. IT doesnt take any extra time out of your day to wish some one a good morning or to say hello to that person you see on the train every morning but could make all the difference to them.

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