Isabella's in the paper

Well we have just bought the Essex chronicle and after loads of pictures they chose one in which mummy looks like she has been caught in headlights. Everyone is making fun of her but at least I look really cute in it. Just for any one that has seen the article there was a few bits that weren't accurate so thought we should clarify a few points. Isabella used to be fed for twenty hours a day but after her last trip to America they have helped us reduce this to five feeds a day which gives her organs time to recover in between each feed. It also means she is not connected to the tubes overnight as we always worried it would get wrapped round her neck. The hope is that now she is used to this we can return to America and they can work and making her mouth less sensitive and trying to get her to learn to swallow and to realise her mouth and stomach are connected. This is a step they couldn't do on the last visit due to being so dependant and constantly attached to the machine.
The centre we are attending is called therapist 4 kids and they run an intensive physiotherapy program which was initially designed for astronauts returning from space with low muscle tone. One of the little girls we met on our last visit is now walking, it's so great to see. We know they can't work miracles but they have taught us with a lot of hard work commitment and their advancements in treatments things you never thought possible can happen. There was a time I feared Isabella wouldn't make it to six years old let alone be laughing sitting and playing. Just shows that you have to never give up and always try to achieve and be the best you can