About Me
- Isabella Grace
- My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info
Monday 21 May 2012
Isabella is now awake but there is a lot if coughing and spluttering, she is on anti biotics now for a chest infection. Hopefully she will start to feel better soon as we are meant to be visiting family in a couple of weeks. There is no real way to know whether the chest infection triggered the seizure or if the seizure caused the chest infection as it can cause fluid on the lungs. Either way looking forward to her being her happy cheery self again as she is exhausted at the min bless her x x x hope your all well. Planning is still going into the fun day and hopefully the newspaper article in the Essex chronicle this week will help generate some new support as we have a long way to go to get the amount if money we need.
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