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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Thursday 14 June 2012

cant believe the walk starts tomorrow argghhhh

So the day is finally upon us after months and months of prepartation and long and difficult training sessions that have left both suzy and karen in quite a lot of pain with shin splints and hip problems they are at last going to set off in the morning... ...
Well the day started off with lots of excitement as we regressed to children with lots of text message thoughout the week which mainly comprised of how many sleeps they had left till they set off. I have to say my excitement started to turn to mild panick when i was filling up the car at the petrol station ( yes some of this was due to the rocketiing petrol prices at this rate we will all be walking).Out of the corner of my eye i noticed the headlines on the front page, yes its said "storms to hit the uk, 80mph winds and three months of rain to fall in the next three days. Not good this will be the three days they are walking through the lake district. Dont think any umbrella is going to help them with the weather thats coming in. Fingers crossed they will be fine and the weather man will have got it wrong. i am not holding my breath.

Well i guess this has made us all realise how much of a huge challenge this is and how its really important we all get behind them so that so that this huge challenge is worth the pain that they will go through. I am still finishing off the final details for the fun day and am still looking for some stall holders to add this something else to the event. So if any of you are keen crafters or are starting up your own business and wqnt o come along then please e mail. There will be no charge for stall holders but it is obvioulsy a charity event and we have a huge challenge of £30,000 to raise so all i ask is that if the day is succesful for you and you make lots of sales then you donate some money to the event.

The fun day will be help at baddow recreational ground in chelmsford between 1200 and 1600, the day will start with the little ones doing a sponsored toddle round the field before letting loose on the stalls bouncy castles and soft play. If any of you want to enter your child into the toddle then please e mail me and i will send you the sponsor form some are going to take part in fancy dress, i think isabella is going as a bee. Although its a toddle we are definately all inclusive , isabella will be doing it in her wheelchair and some tiny ones will be in baby walkers and prams. The day is all about fun and everyone feeling included. We have also hired the hall inside the hall there will be a soft play area ( which there is no charge for) and pen pencils messy play for the children to enjoy to give a sensory exploring area.

Would be great to see you all there any questions pop me an e mail on christine_bennett79@yahoo.co.uk

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