About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Thursday 21 June 2012

tears, A&E and infected legs

Well over the last couple of days things have been getting tougher and tougher for karen and suzy, they have obvioulsy tried to keep from us how much they were struggling. I was aware that there legs had been swelling up quite significantly every day and they have had to sleep with them elevated and cold compresses on and whilst this hasnt aleviated the problem it has ease it enough for them to ease the pain and continueing walking. Unfortunately this morning they woke in a lot of pain and none of the swelling had gone down making it difficult and painful for them to bend their legs. Thankkfully they thought with their heads and not their hurts and went to hospital. After several hours they were advised they needed to rest and elevate their legs as they had damaged all the soft tissue. Karen also found out that in the process of her walking shehad been bitten by something which had caused her leg to become quite badly infected. She is now on anti biotics four times a day and hopefully the pain will ease over the next 24 hours.

I recieved a very teary phone call from them both today were they felt so bad, as a family we are obvioulsy worried for them, i would love to go and see them but i am unable to drive at the minute as am suffering from whiplash following a car accident a couple of weeks ago. We have spoken to them and reassured them that they have to rest today and tomorrow. they have looked at their route and have told me that they will finish the walk and will still get to chelmsford on saturday as they had planned to.

We are so proud of them and wish them all the best, they are two of the strongest woman i know and they have worked so hard i think its times like this when we can all sit back and think about the size of this challenge and how tough it has been on them.

Thankyou for all those people that have sponsored them and donated, we have raised nearlly six thousand pounds, we obvioulsy have a huge way to go as our aim is £30.000. For any one that wants to donate there is a paypal link on the home page of this blog on the left hand side or contact me on my e mail which is christine_bennett79@yahoo.co.uk if you wish to donate trough bank transfer or by sending a cheque.

Please share this blog with family and friends as i regularly update my sisters about how many hits we are getting , its a nice way of them knowing that even though they are far away from family and friends we are all thinking of them and care

1 comment:

  1. Hello Isabella, I how was your injury, I wish your okay by this time. Is there any third party involve with your accident? You can file a whiplash compensation claim to the negligent party who causes you whiplash.

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