About Me

My photo
My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Thursday 21 June 2012

a note from the intrepid two

Thank you all for all the support you have shown us over the last couple of days it has really kept us going. As some of you are probably aware we had to pay a little visit to A&E following in insect bite on Tuesday which has turned quite nasty.




All was not lost though as we did manage to entertain all the staff and other ill patients that were waiting to be seen as both me and Suzie decided to have a fit of giggles when we realised that yet again we had problems in opposite legs!!!



This concluded in the receptionist announcing that they had a right pair in reception and putting the mental health team on standby.



Suzie then proceeded to completely baffle the poor doctor when after giving her a thorough examination for Deep Vein Thromboses he confessed he was very confused and asked again how she had received these injuries? Her reply was to say we had been walking..............when asked where have you been walking she told him Barrow in Furness, cumbria. He proceeded to remove her shoes and socks and was in complete shock at the state of her feet untill she explained "oh don't worry they are just blister plasters" I think he thought she has some sort of skin dissorder!!! She then decided this was a good time to let him know we were walking to Chelmsford (I think the doctor at this point was loosing the will live), especially when she was told she could go, he then spotted the tube coming out of her rucksack!!! he questions what the tube was for to which she replied while smiling "oh don't worry about that thats for my water" I now think the doctor is receiving medication as he thought Suzie was on oxygen!!! All made for a very entertaining day.



We will be fine, and we complete this challenge.



All our Love Karen & Suzie

1 comment:

  1. Keep up the fantastic work girls. We are all following you in spirit xxxx Sullivans xx

    ReplyDelete