About Me

My photo
My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Wednesday 27 June 2012

The girls are still going and the end is in sight

Well there was definately a moment when i didnt think i would be writing this post but am so so proud of my sisters and cant believe how after all the pain and set backs they are still on track with their walk. I spoke to them today and they seem i great spirits although when i asked them how there legs were holding up they told me they had gone past the point of pain and that there legs were permanently covered in freeze spray. Not good but they are on the home stretch with only three days and approximately seventy miles to go.
I dont know about you but seventy miles seems like a feat in itself and thats before you add on the 300 they have nearlly completed over the last week and a half.

Well its been full steam ahead in essex as well as we all knuckle down with the fun day planning, this has been slightly hampered by my back injury following a car accident but my new motto has been slow and steady, something which i am sure karen and suzy are also working to by now, but as we all know slow and steady wins the race.

The fun day will be held at baddow recreational ground and millenium hall in chelmsford on saurday 30 june between 1200 and 1600, there will be loads going on with both the field and the hall being taken advantage of. The field will have all your favourites with bouncy castles, coco nut shires, face painters as well as hook the duck and lots of other fun day favourites, there will also be some independant crafters there setting up stalls selling their beautiful products. I think i will be parting with some money that day. We also have the hall in case the weather isnt so great were there will be a soft play area, arts and crafts and a messy play area.

We would love to see you all there and have as big a crowd as possible to cheer karen and suzy over the finish line.

I am aware that Chelmsford Weekly news are very kindly putting an article in the paper advertising the event for us, unfortunately they have forgotten to put on there how people can donate so for all those people if you wish to help us get to our target of £30,000 then you can donate either by handing it in to any essex police station marked for the attention of DC 3017 Bennett at Brentwood police station, by using the paypal donation button on this site or by contacting me by e mail on christine_bennett79@yahoo.co.uk for us to discuss other arrangements ot to provide you with an alternative postal address.

Again thanklyou to everyone for all your support it has kept karen and suzy going and kept them motivated in what can only be described as a huge task.

Speak to you all soon and i will post some pics of the fun day for those of you supporting from other parts of the uk.

No comments:

Post a Comment