Well i had my first day of treatment today and everyone has said what a good girl i am. The therapist that will be working with me is lovely and i really like her. we had lots of cudddles in between exercises so i did even more than i have ever done, mummy was really pleased as she didnt think i would be as good as i was. I did cry at the beginning of most exercises but that was just because it was the first time when they repeated some of them i was much better i even went on my tummy and didn't cry.
Tomorrow i get to put the suit on and go in the cage, there was two other children there today and they where lasughing loads in the cage and seemed to enjoy it lots. Its lots of fun there the staff are brilliant and they all speak lots of languages,i have a friend there called maria who is a bit older than me but she really enjoys the treatment and is learning to speak italian during it as the staff all speak ots of languages so they sing songs to us in different languages. Mummy thinks that my first word will be a foreign word now.
We then met a really nice lady who is a doctor here in america i worked my charm and she loves me now, mummy said that she specialises in children that dont eat and who struggle to communicate. She seems to think she can help me and has agreed to see us whilst we are over here so that mayb e i will be able to eat one day without needing to be hooked up to my machine. We have an appointment tomorrow with her after my normal therapy so that she can assess me. THyis costs quite a lot of money but mummy thinks it will be worth it and as everybody was so kind and generous we should have the money to pay for it from all the fundraising.
I also have my check up tomorrow for the oxygen therapy unfortunately i will have to be up very very early as we have to go and see the doctor at half seven in the morning so that we can hopefully start in the afternoon. My days will become extremely busy as i will have therapy every day between eight and twelve and then the specialist will see me between half twelve and half one ( i think she was booked up so has squeezed me in over her lunch) and then if all goes to plan i will get picked up for oxygen therapy at one fourty five. I am going to be very tired but it will be worth it and i can rest at the weekends.
Will write again tomorrow and let you all know how the appointments have gone
About Me
- Isabella Grace
- My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info
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