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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Saturday 27 March 2010

Isabellas fun day out

Hi everyone well i eventually had a day off from therapy today so we went to jungle island in miami. Jungle is an animal park but it has all waterfalls and big plants and trees. I really like places with big trees as when the sun shines through i can see all the shadows and the light flickering.  When we first went in there was lots of parrots there we had a picture taken with the parrots and because i couldnt see the lady let me  stroke the parrots so i could feel what they looked like. We went and saw all the animals and watched the shows i liked the shows as everyone cheered and made lots of noise and it made me smile listening to everyone. There was a snake in the show that was so big it took four grown ups to hold it. I never touched this one but i was allowed to touch another onother one and then the man put it around my neck. That was very strange i didnt cry and smiled i think mummy was a little scared though but she was trying to be brave. Mummy got scared of the parrots when she was feeding them as one nibbled her finger and it made her scream which made me laugh.
We then went to see the kangaroos, this was my favourite part as i got to stroke them, one of them was really nice and tried to nuzzle into my face i kept trying to put my face on it but mummy wouldnt let me as she knew i would probably lick it and they dont have a bath everyday like me so they arent clean.
I had so much fun today and at the end of the day i got a monkey teddy bear that hangs round my neck so i dont drop it, its very furry and fluffy and i really like it. I think tomorrow we are going to have a relaxing day so that i have lots of energy to get up early on monday for therapy again.

1 comment:

  1. hello Isabella hope your having lots of fun in america!
    I'm so jelous of you i want to go to a baseball game its unfair!
    Even better you get extra holiday by accident!
    and keep on persavering dont give up!!!!!!!!!!!!!

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