About Me

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My name is Isabella grace i am Six years old and i have a rare chromosone disorder, it doesnt have a name so not much is known about it.I have two holes in my heart , epilepsy which i struggle with especially in the winter. I am also registered blind and am unable to feed so i am fed by a machine. Despite all this i am a very happy little girl and have started smiling and giggling although people are still trying to figure out what makes me laugh. I am very delayed but i can hold my head now and roll onto my side in the last couple of weeks i have started sitting for over an hour on my own which is amazing although mummy still finds it hard as i normally have to be carried every were and i am getting very heavy but i like being carried as its extra cuddles.xx My family are amazing are are all working hard at the minute to raise £30,000 so that i can go to America for intensive and specialist physiotherapy and speech and language therapy. The hope is that one day i will take my first step or eat my first chocolate button. DONATIONS CAN BE MADE USING THE PAYPAL BUTTON OR BY SENDING IT TO DC 3017 CHRISTINE BENNETT CAIT BRENTWOOD POLICE STATION or e mail us for further info

Sunday 21 March 2010

Our journey to Miami

Hi well i am here and safe in Miami. It all started with me mummy and tony getting up at six in the morning i was awake and being a very good girl although i did have a sllep on the way to the airport and all the way through customs and passport control it was just all very boring. Mummy was glad as she thought there would be problems with my milk and medicines but everything went very smoothly. I woke up just in time to annoy mummy and tony as they where trying to eat breakfast. We then walked to the hamleys shop and i played with a giggling monkey that tickled me. Mummy and tony then took me onto a big aeroplane they must have heard how famous and special i was as i got to go on the plane first and had a special seat right in the middle of mummy and tony. I really liked my seat. The nice ladies also gave e a blanket which i had loads of fun eating. My favourite part was when we took off and all the engines fired up mummy is normally scared at this bit but she said she felt stupid being scared when i was loking round smiling. i did really well on the plane and stayed awake playing for about five hours and then for the last half had cuddles on mummy and tonys knee and fell asleep although they where worried as they said i had got eavy and kept making their legs go dead.
When we got off the plane the funny americand didnt listen properly and brought me a grown up wheel chair we all looked very confused when we got off the aeroplane so we had to go back on and wait for my chair. We had no problems getting through the airport but getting to our car was a nightmare we had to get a bus to where you pick up the cars which wasnt easy as they had no disabled access or anything so tony and the man had to lift me up in my chair and then try and get all the bags up. Mummy was annoyed as when we got their no one would help us with our bags and they had to struggle to get it all nto the office to get the car. I think we where all starting to get tired now as it was nearlly one in the morning in england. I got uoset as there was two other children that screamed right near me so i had a little cry but soon stopped when mummy gave me a cuddle.
I am really enjoying our room as they gave me a big double bed to myself and extra pillows so mummy has piled all the pillows uo so no matter how much i wriggle i cant fall out.
I will put the pictures on here later of me on theaeroplane but its only half seven n the morning here and tony is still asleep sodont want to put the lighht on to sort the camera out. Will miss you all loads and will speak soon.
Paul, claire give buster a big cuddle from us all. Oh by the way mummy forgot to say the two biscuits in his bag are posh doogy treats hopefully you and claire havent eaten them by accident lol

2 comments:

  1. Hi Stinky.
    We are reading your blog with interest and will follow your adventure every day. We are missing you lots already. I am glad you were good for Mummy and Tony on the Aeroplane. I will ask Mummy to give you a special cuddle from Nanny and me.
    Love Grandad Belly.

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  2. Hi Isabella so glad you had a good flight, how lovely that you had your own special seat and am pleased that you are being spoilt by everyone. I have been thinking of you all weekend and am missing you and I am looking forward to seeing your pictures.

    Hugs and Kisses from Lesley

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