Review of week one

Hi everybody well i havve just finished my first week of treatment, i have been finding it very difficult as i am doing things that i have never done before and it feels very strange for me. Although i find it hard as i have never done this much exercise before i am enjoying it and really like ashley and Laune who are my therapists that help me. They make me do four hours of physiotherapy a day with only a ten minute break so i work really hard. They make it fun though and there is lots of singing and games involves. Whilst i have my treatment there are other therapists in the room with other children i have my treatment with Maria and francesco. It makes it so much more fun having friends there as they all sing to me whilst i do my exercise and everyone cheers me when i do things and this makes me smile.

I have to be up at six o clock every day and start of with stretches and sensory work as i havent lost my baby reflexes which means that when something touches my foot i automatically lift my foot up rather than curling my toe forward. They have to get rid of this so that i can walk one day hopefully otherwise even if i get strong i wont be able to put weight through as i will also lift my leg up when my foot touches something. We then do strengthening exercises like sitting up and lying back down and putting weight through my arms and trying to keep myself in the middle.
After all this i go in my special suite the elastic bands that join the parts work like the muscles do so that when i have it on my body has to work against the resistance of it. It also supports me in positions that i am too weak to be in so that i can get used to being in the positions and working the muscles in that way. Laune and ashley ten put me in the spider cage which gives me a bit more support to stand so that laune and ashley can help me do even more exercises, its very hard work and i am very tired at the end of it but they do make it fun.

I finish all this after twelve and then have a whole afternoon of other therapy i have met a very nice lady called pattie she is a doctor and she works with rose between them they think they will be able to get me eating although they have said it will be lots of hard work and will take a long time as i have never learnt how to swallow or how to use my tongue. They are stimulating all my senses at the minute and trying to reactive the automatic response that gets me to swallow. This is partly done by massaging the jaw line i really dont like this mummy thinks i am mad as she would love a face massage but the feeling is so strange for me that it makes me cry. The thing i hate the most though is when they try and get me to move my tongue as they use different flavoured wooden sticks they do very basic things at the minute like pushing my tongue down as its always in the roof of my mouth but i have never had anything in my mouth so i try and stop them, its not all horrible though, they have a little vibrating toy that they put against my skin which i really like so we do one rep of horrible stuff then have play time. As well as all this i also go into a hyperbarick chamber so that i get lots of oxygen to help me as i have very little oxygen around my body this is fine as i can just relax.

 Next week i might be doing some sessions with a horse after everything else as my doctor has said that its very good at automatically correcting the body and helps with balance and core stability obviously wont be doing it on my own as i cant sit up on my own but i will have someone helping me am not sure when this will be next week but will put some pictures on here whhen i go.

Hope everyone is well, i am definately looking forward to a rest this weekend as am very tired today but it will all start again on monday.